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European Reference Network EpiCare

European Reference Network EpiCare

Full membership EpiCare

The European Reference Networks (ERNs) were launched in 2017. They involve more than 900 highly specialised health care teams, located in more than 300 hospitals in 24 European countries and in Norway. The main mission of the ERNs is to help patients with rare or low-prevalence complex diseases, and to shape healthcare systems and national networks.

A disease is defined as rare when it affects fewer than one in 2 000 people, is serious, chronic and often life-threatening. Between 5 000 and 8 000 of rare diseases affect daily life of around 30 million people in the EU.

The ERN EpiCARE brings together highly specialized health centres (38 full members and 12 affiliated partners) in 26 European countries with expertise in rare and complex epilepsies.